It’s funny how a small community like Oklahoma stays so inter-connected. A couple of years ago, we interviewed a gal for a position in marketing. We loved her, adored her, but the fit for her and us just ended up not being ideal. We friended each other on Facebook, and I followed her life from there: she had twin little boys not even two years ago, started a blog, and has been being an awesome momma to them since they arrived in this world!
In March, one of the boys, Logan, began to have unexplainable seizures. He spent about 3 weeks sedated and incubated because they were unable to get the seizures under control. After lots of testing they found that he has Alpers Disease, a terminal genetic disease passed on by both parents, if they’re carriers. Logan’s decline has been rapid, with post-surgery complications after the doctors placed a feeding port in his stomach. Karlee and her husband are having to prepare themselves to make some very difficult decisions, as Logan is on life support.
If that isn’t devastating enough, the doctors informed Karlee and her husband that because the disease was genetic, that they’d have to test Logan’s brother, Griffin as well. We all remained prayerful and cautiously optimistic. Karlee posted this to her blog on June 26:
The difficult part is that we received results from Griffin’s genetic test yesterday. Once again, we received news no parent should ever have to. Griffin is affected as well. He has the same genetic mutation as Logan, so he has Alper’s too. Other than being slow to walk on his own, he has shown no signs of developmental delay nor any other symptoms, so we were certain his test was going to come back negative. We are planning to consult with Logan’s doctors to see if there is anything preventative we can do right now, other than wait for his symptoms to appear. Going through this with Logan has been just about all we could handle, and the thought of doing this all again and seeing another child suffer is unbearable. Griffin has been our joy and our hope, making us smile at all the right times. To say we are heartbroken and devastated would be a severe understatement. While we know in our hearts there is a greater purpose at work, we are really struggling to process at this point.
Friends, I cannot imagine. As the momma of two little boys, one of whom is almost Logan and Griffin’s age, I cannot even fathom. It’s hard to write this without crying, and feeling like my heart is breaking, and I know that is nothing in relation to what Karlee is having to deal with right now. Please keep this little family at the top of your prayers. They need two miracles.
P. S. My friend, Amy Sargeant, is putting together an auction fundraiser. If you know anyone who would like to donate items, you can contact her through her blog at www.saltfamilyblog.com or website: amysargeantphotography.com.